Aidan’s Law
Bill journey · stage 2 of 5
Under committee review
What it doesSummary introduced in house (Jan 14, 2019)
Aidan's Law
This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children.
The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.
What just happenedJan 25, 2019
Referred to the Subcommittee on Health.
Who’s behind it
- Introduced in HouseJan 14, 2019
- Jan 25, 2019Committee
Referred to the Subcommittee on Health.
Health Subcommittee - Jan 14, 2019IntroReferralH11100
Referred to the House Committee on Energy and Commerce.
Energy and Commerce Committee - Jan 14, 2019IntroReferralIntro-H
Introduced in House
- Jan 14, 2019IntroReferral1000
Introduced in House