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H.R. 5453

Aidan's Law

Aidan's Law

This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children.

The bill also reauthorizes through FY2022 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

Referred to the House Committee on Energy and Commerce.

Rep. Clarke, Yvette D. [D-NY-9](D-NY)Sponsor
2 cosponsors1 D1 R
2cosponsors1committees3actions6subjects
  1. IntroReferralH11100

    Referred to the House Committee on Energy and Commerce.

    Energy and Commerce Committee
  2. IntroReferralIntro-H

    Introduced in House

  3. IntroReferral1000

    Introduced in House

Aidan's Law — Informed