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H.R. 5115

RARE Act of 2018

Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018

This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.

The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.

Referred to the Subcommittee on Health.

Rep. Carson, Andre [D-IN-7](D-IN)Sponsor
19 cosponsors13 D6 R
19cosponsors1committees4actions11subjects
  1. Committee

    Referred to the Subcommittee on Health.

    Health Subcommittee
  2. IntroReferralH11100

    Referred to the House Committee on Energy and Commerce.

    Energy and Commerce Committee
  3. IntroReferralIntro-H

    Introduced in House

  4. IntroReferral1000

    Introduced in House

RARE Act of 2018 — Informed