RARE Act of 2018
Bill journey · stage 2 of 5
Under committee review
What it doesSummary introduced in house (Feb 27, 2018)
Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018
This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.
The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.
What just happenedMar 2, 2018
Referred to the Subcommittee on Health.
Who’s behind it
- Introduced in HouseFeb 27, 2018
- Mar 2, 2018Committee
Referred to the Subcommittee on Health.
Health Subcommittee - Feb 27, 2018IntroReferralH11100
Referred to the House Committee on Energy and Commerce.
Energy and Commerce Committee - Feb 27, 2018IntroReferralIntro-H
Introduced in House
- Feb 27, 2018IntroReferral1000
Introduced in House