Bill journey · stage 2 of 5
Under committee review
What it doesSummary reported to senate with amendment(s) (Apr 4, 2016)
Advancing Research for Neurological Diseases Act of 2016
(Sec. 2) This bill amends the Public Health Service Act to authorize the Department of Health and Human Services (HHS) to improve the collection of epidemiological and surveillance data on neurological diseases and conditions. HHS may provide support to public or nonprofit entities for such purpose. Collected data must be made available for biomedical research.
What just happenedApr 4, 2016
Placed on Senate Legislative Calendar under General Orders. Calendar No. 408.
Who’s behind it
Placed on Senate Legislative Calendar under General Orders. Calendar No. 408.
Committee on Health, Education, Labor, and Pensions. Reported by Senator Alexander with an amendment in the nature of a substitute. Without written report.
Committee on Health, Education, Labor, and Pensions. Reported by Senator Alexander with an amendment in the nature of a substitute. Without written report.
Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced in Senate
Advancing Research for Neurological Diseases Act of 2016
(Sec. 2) This bill amends the Public Health Service Act to authorize the Department of Health and Human Services (HHS) to improve the collection of epidemiological and surveillance data on neurological diseases and conditions. HHS may provide support to public or nonprofit entities for such purpose. Collected data must be made available for biomedical research.
Advancing Research for Neurological Diseases Act of 2015
Amends the Public Health Service Act to require the Centers for Disease Control and Prevention to: (1) enhance and expand infrastructure and activities to track the epidemiology of neurological diseases, including multiple sclerosis and Parkinson's disease; and (2) incorporate information obtained through those activities into a National Neurological Diseases Surveillance System. Requires the Department of Health and Human Services (HHS) to ensure that the System facilitates further research on neurological diseases.
Requires HHS to provide for the collection and storage of information on neurological diseases, including the incidence, prevalence, and other information, to the extent practicable.
Requires HHS to: (1) make information and analysis in the System available to federal agencies and to the public, including researchers; and (2) ensure that privacy and security protections applicable to the System are at least as stringent as the protections under the Health Insurance Portability and Accountability Act.