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Bill114th CongressFiled Jul 29, 2015Health
H.R. 3381

Childhood Cancer STAR Act

Bill journey · stage 2 of 5

Under committee review

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What it doesSummary passed house amended (Dec 6, 2016)

Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2016 or the Childhood Cancer STAR Act

TITLE I--MAXIMIZING RESEARCH THROUGH DISCOVERY

Subtitle A--Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act

(Sec. 101) This bill amends the Public Health Service Act to authorize the National Institutes of Health (NIH) to provide support for the collection of the medical specimens and information of children, adolescents, and young adults with selected cancers that have the least effective treatments in order to achieve a better understanding of these cancers and the effects of treatment.

The national childhood cancer registry is reauthorized through FY2021 and revised to authorize the Centers for Disease Control and Prevention to award grants to state cancer registries to improve tracking of childhood cancers.

Subtitle B--Pediatric Expertise at NIH

(Sec. 111) The National Cancer Advisory Board must include an individual knowledgable in pediatric oncology.

Subtitle C--NIH Report on Childhood Cancer Activities

(Sec. 121) The Pediatric Research Initiative must annually report on childhood cancer research projects conducted or supported by the NIH.

TITLE II--MAXIMIZING DELIVERY: CARE, QUALITY OF LIFE, SURVIVORSHIP, AND CAREGIVER SUPPORT

Subtitle A--Childhood Cancer Survivors' Quality of Life Act

(Sec. 201) The Department of Health and Human Services (HHS) may support pilot programs to develop or study models for monitoring and caring for childhood cancer survivors throughout their lives.

HHS must convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors.

(Sec. 202) The NIH may support research on: (1) outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations; and (2) follow-up care for pediatric cancer survivors, including research on the late effects of cancer treatment and long-term complications.

(Sec. 203) HHS may establish a task force on standards for high-quality childhood cancer survivorship care.

(Sec. 204) HHS may carry out a demonstration project to improve care coordination as childhood cancer survivors transition to adult care.

Subtitle B--Coverage and Payment of High Quality Care

(Sec. 211) The Government Accountability Office must make recommendations to address barriers to childhood cancer survivors obtaining and paying for adequate medical care.

What just happenedDec 7, 2016

Received in the Senate.

Who’s behind it

Rep. McCaul, Michael T. [R-TX-10](R-TX)Sponsor
270 cosponsors158 D112 R
Read on Congress.gov
270cosponsors1committees11actions1related bills24subjects
  1. Dec 7, 2016IntroReferral

    Received in the Senate.

  2. Dec 6, 2016FloorH38310

    Motion to reconsider laid on the table Agreed to without objection.

  3. Dec 6, 2016FloorH37300

    On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H7193-7196)

  4. Dec 6, 2016Floor8000

    Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H7193-7196)

  5. Dec 6, 2016FloorH8D000

    DEBATE - The House proceeded with forty minutes of debate on H.R. 3381.

  6. Dec 6, 2016FloorH30000

    Considered under suspension of the rules. (consideration: CR H7193-7198)

  7. Dec 6, 2016FloorH30300

    Mr. Burgess moved to suspend the rules and pass the bill, as amended.

  8. Jul 31, 2015Committee

    Referred to the Subcommittee on Health.

    Health Subcommittee
  9. Jul 29, 2015IntroReferralH11100

    Referred to the House Committee on Energy and Commerce.

    Energy and Commerce Committee
  10. Jul 29, 2015IntroReferralIntro-H

    Introduced in House

  11. Jul 29, 2015IntroReferral1000

    Introduced in House

Passed House amendedDec 6, 201636

Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2016 or the Childhood Cancer STAR Act

TITLE I--MAXIMIZING RESEARCH THROUGH DISCOVERY

Subtitle A--Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act

(Sec. 101) This bill amends the Public Health Service Act to authorize the National Institutes of Health (NIH) to provide support for the collection of the medical specimens and information of children, adolescents, and young adults with selected cancers that have the least effective treatments in order to achieve a better understanding of these cancers and the effects of treatment.

The national childhood cancer registry is reauthorized through FY2021 and revised to authorize the Centers for Disease Control and Prevention to award grants to state cancer registries to improve tracking of childhood cancers.

Subtitle B--Pediatric Expertise at NIH

(Sec. 111) The National Cancer Advisory Board must include an individual knowledgable in pediatric oncology.

Subtitle C--NIH Report on Childhood Cancer Activities

(Sec. 121) The Pediatric Research Initiative must annually report on childhood cancer research projects conducted or supported by the NIH.

TITLE II--MAXIMIZING DELIVERY: CARE, QUALITY OF LIFE, SURVIVORSHIP, AND CAREGIVER SUPPORT

Subtitle A--Childhood Cancer Survivors' Quality of Life Act

(Sec. 201) The Department of Health and Human Services (HHS) may support pilot programs to develop or study models for monitoring and caring for childhood cancer survivors throughout their lives.

HHS must convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors.

(Sec. 202) The NIH may support research on: (1) outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations; and (2) follow-up care for pediatric cancer survivors, including research on the late effects of cancer treatment and long-term complications.

(Sec. 203) HHS may establish a task force on standards for high-quality childhood cancer survivorship care.

(Sec. 204) HHS may carry out a demonstration project to improve care coordination as childhood cancer survivors transition to adult care.

Subtitle B--Coverage and Payment of High Quality Care

(Sec. 211) The Government Accountability Office must make recommendations to address barriers to childhood cancer survivors obtaining and paying for adequate medical care.
Introduced in HouseJul 29, 2015

Childhood Cancer Survivorship, Treatment, Access, and Research Act of 2015 or the Childhood Cancer STAR Act

This bill amends the Public Health Service Act to permit the National Institutes of Health (NIH) to provide support to collect the medical specimens and information of children, adolescents, and young adults with cancer to improve the understanding of these cancers and of the effects of treatment.

The national childhood cancer registry is reauthorized through FY2020 and revised to require the Centers for Disease Control and Prevention to award grants to states to improve tracking of childhood cancers.

This bill amends the Federal Food, Drug, and Cosmetic Act to require manufacturers and distributors of investigational drugs to publish policies for compassionate use of the drugs.

The Department of Health and Human Services must: (1) support pilot programs to develop or study models for monitoring and caring for childhood cancer survivors throughout their lives, (2) convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors, (3) establish a task force on standards for high-quality childhood cancer survivorship care, and (4) carry out a demonstration project to improve care coordination as childhood cancer survivors transition to adult care.

The NIH must support research on: (1) outcomes for, and barriers faced by, pediatric cancer survivors within minority or medically underserved populations; and (2) follow-up care for pediatric cancer survivors, including research on the late effects of cancer treatment and long-term complications.

The Government Accountability Office must make recommendations to address barriers to childhood cancer survivors obtaining and paying for adequate medical care.
Childhood Cancer STAR Act — Informed